I talk about my condition a lot. It’s constantly on my mind and typically bothering me in some way shape or form. For example, when I sit down at a table I’m vying for a seat that has an open chair across from it or to my right so that I can elevate my leg. When I’ve been sitting for awhile without elevating my leg I want to be able to stretch out my leg… or elevate it. When I’ve been walking around for a while, I’d like to be able to sit down. When my shoe has been on for too long, I’d like to be able to take it off… and don’t even get me started on adjustments to my stocking throughout the day.
It wasn’t until I had a guest over (not the love of my life) that I realized how much my condition dominated the conversation. If I was going to include that person in the conversation going on in my head I needed to give them the background that they were not intimately familiar with. That, or not talk about it…
It took me longer than necessary to decide to stop talking about it.
Once I decided to stop talking about it, I empowered myself to “act normal.” It was rocky at first, but I began to feel like I had a handle on what I needed to do to keep myself comfortable… I didn’t always know what to do (like that day when I thought a slow walking tour was a good idea), and I didn’t always feel great (like after I drove for an hour in traffic)... but I figured out what actions to take, when to take them, and why and just did them.