Lymph is Good
chronicles the journey of an active 30-something Dallas-ite trying to keep her head up while grappling with primary lymphedema.

Goldilocks Syndrome

You remember Goldilocks… right? One porridge was too hot, one porridge was too cold, and one porridge was just right. That’s how I felt when trying on my stocking for the first time. 

My stocking is a complex garment of varying compression classes and parts. It’s Elvarex by Jobst and is a custom fitting. To find a version that was acceptable, I went through two iterations… and can’t say that I’m particularly thrilled with this one (the third one). When I tried on the first one I was appalled with the way that it sat on my body. Two words: panty lines. They were unavoidable. The fabric, given the class changes, had seams that were immovable. Though they weren’t as noticeable on my affected leg, they were super noticeable on my unaffected leg.

You read that right. I now had psychological problems to contend with on both sides of my body.

In trying on my first stocking, I had to overcome the shock of the visual to assess its functionality. I had no idea what to say about it and was frustrated by my fitters lack of confidence in the product measurements. It was as if she didn’t know what she was doing (“... we’ll estimate here…” / “... hm… this seems right…” / “... this form is different…”), so I kept on making more comments to help explain my frustrations… and her comments kept on getting more and more uncertain.

A day or two later I called back and continued my comments. Once I transitioned from no stocking to a stocking and then from the first stocking to the second stocking I was full of questions. Was my leg supposed to feel different? Should I be concerned that my knee feels like it has less compression on it (even though that was considered to be my trouble spot)? Am I supposed to feel like I am constantly wearing an ill-fitting pair of pants? 

Being new to the condition, the stockings, and my day-to-day management routine, I had no idea what to expect and felt super alone in my decision-making analysis. I had expected that the fitter, or the people at my chosen compression garment shop would be more understanding… they were not… 

I still feel like Goldilocks… and still feel uncertain.  

My First Run

The Lymphoscintigraphy