It took me several weeks to accept my diagnosis and then several more to associate myself with the condition once I had accepted it. I didn’t want to talk about it. I didn’t want to tell anyone what I had. And I certainly didn’t want to put a name on it. For months I had been vehemently stating that I didn’t have lymphedema because I wasn’t obese, inactive or post-surgery. I was wrong.
I have lower extremity and truncal primary lymphedema and it’s because the lymphatic channels in my right leg and pelvis decided to call it quits… sucks for me.
As I began to understand the distinction between primary and secondary lymphedema I sought out people “just like me” who were diagnosed with the condition. I was in search of healthy, active, young professionals who were trying to understand the same stuff that I was trying to understand… like what to wear, what to eat, what to do, and how to live their new “normal” life.
I found three people online through google searches and social media that were talking about, writing about, and living with lymphedema. (Since I’m not a Facebook junkie I was going on old school referrals and google searches.) In reading through their stories, absorbing their uplifting posts, and seeing their pictures I was welcomed into my new reality.
Many, many, thank yous go out to the ladies behind The Lymphie Life, LymphFashion, and Lymphedema Runner. You are my inspiration for Lymph is Good. I hope to one day be managing my condition as well as all of you have managed yours.