It wasn’t until January 9, 2017 that I accepted my diagnosis of primary lymphedema. By that time it had been over six months since I had the pain in my knee, heavy leg sensations, and obvious swelling. By mid-November, the swelling had spread to my calf, ankle, and toes. Though I had taken a two month hiatus from doctor visits - since no one could tell me why my thigh was swelling - I went back to the medical community after the swelling spread.
I was determined to get back to running and was trying to be as positive as possible about my treatment plan (though I had none), My plan was to “get better” through positive imagery and storytelling. In mid-November I wrote this post on my personal blog with the punchline: A picture is worth 1,000 words… but it’s the 1,000 words you tell yourself when you see the picture that matters. I’m working on telling myself the 1,000 words to keep me hopeful before the moment is gone.