Lymph is Good
chronicles the journey of an active 30-something Dallas-ite trying to keep her head up while grappling with primary lymphedema.

You're human?!

I broke down and e-mailed my surgeon this past week. I took measurements over the weekend and confirmed that my leg is actually bigger than it was pre-surgery and I’m nearly 6-weeks out. This was definitely not in the cards and very much so unexpected… apparently for all of us!

Unfortunately for me (I’m convinced) that my surgeon doesn’t actually read e-mails. In fact, I’m fairly certain that he has someone boil down the e-mail to a very short question to which he responds. Which to me could mean taking an entire patient out of context and not looking at the person but rather responding to a much smaller aspect of the problem. 

I feel this way because it has happened to me on more than one occasion. In this particular situation my e-mail stated a very particular ask: Can I bandage my leg to reduce the swelling without jeopardizing my recovery? This question was supplemented with references to my recovery plan (which I documented and received “approval” on shortly after my surgery) as well as measurements. 

Today I received a call back from the receptionist with an answer to my question. Her response did not take into account a) the specifics of my condition (i.e. the 1.5 garment that I wear regularly) b) the idea of bandaging vs. compression garments and c) me… the human being… the one with a condition that is highly uncomfortable when not maintained appropriately. 

When she was unable to answer my questions I requested clarification from the surgeon… which she was unable to get in an acceptable fashion (even after calling me back). And so, I wait. 

It blows my mind how little those close to this condition understand it. (It’s not that complicated!) Furthermore, it frustrates the heck out of me when people feel that this condition can be taken out of context of the patient. Medicine doesn’t work like that! You always need to take into consideration the other patient-related factors. Always read the patient’s history… even I know that!

Define normal...

Here We Go Again